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Resources for Scientists

NDF continues to be the world leader in funding diverse and groundbreaking research projects devoted to GNE Myopathy. Recently we supported Doctors Zohar Argov and Stella Mitrani-Rosenbaum at Hadassah Hospital in Jerusalem, Israel in their quest to further their gene therapy research. We also supported our postdoctoral fellow at UCLA, Dr. Hossein Khademian, in his exploration of the basic science underlying the disease.

We are always on the lookout for promising research projects that will directly impact the lives of GNE Myopathy patients. 

If you are a researcher interested in applying for funding from NDF, please contact us. 


Ongoing Scientific Studies and Collaborations

The following laboratories and scientists are currently the key players in the field of GNE Myopathy research.

1.  Hadassah Hospital, Jerusalem, Israel 
     Dr. Zohar Argov & Dr. Stella Mitrani-Rosenbaum


2.  Open Medicine Institute, Mountain View, CA, USA
     Dr. A Kogelnik

3.  HIBM Research Group, Inc., Chatsworth, CA, USA

4.  The National Institutes of Health, Bethesda, Maryland, USA

5.  Natural History Study  

6.  National Institute of Neuroscience

7.  National Center of Neurology and Psychiatry, Tokyo, Japan
     Dr. Ichizo Nishino
     Dr. Ikuya Nonaka

8.  Ultragenyx Pharmaceutical Inc., Novato, California, USA 

                          Click the image below for a detailed and comprehensive explanation of GNEM (HIBM)