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News & Events

Upcoming Events

Our calendar of events is always growing so check back for registration links and upcoming events... 

 

 

 

May Patient Huddle

Sunday, May 3, 2020
9:00 am10:00 am

A virtual, peer-to-peer support and mentoring group focused on the cognitive health & well-being of people diagnosed with GNEM.

Please check back for registration link

POSTPONED- 7th Annual NDF Symposium on GNE Myopathy

Saturday, May 9, 2020
9:00 am EDT7:00 pm EDT
Boston, MA
POSTPONED- 7th Annual NDF Symposium on GNE Myopathy

Please join us for NDF’s 7th Annual Symposium on GNE Myopathy - a fact-filled event including up-to-the-minute information and presentations from scientists and industry professionals.