Our calendar of events is always growing so check back for registration links and upcoming events...
May Patient Huddle
A virtual, peer-to-peer support and mentoring group focused on the cognitive health & well-being of people diagnosed with GNEM.
Please check back for registration link
POSTPONED- 7th Annual NDF Symposium on GNE Myopathy
Please join us for NDF’s 7th Annual Symposium on GNE Myopathy - a fact-filled event including up-to-the-minute information and presentations from scientists and industry professionals.