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NDF is excited to introduce our new series of podcasts in 2020 called "NDF TALKS…”

Each episode will feature a GNE Myopathy community member’s personal experience with GNEM.
Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNEM.


In NDF Talks 1st episode, get to know NDF Program Manager Tara in this open and candid conversation about living with GNEM.

"I'm so flabbergasted by GNEM in a good way in a really really good way because it has allowed me to become more of my true self" - Tara