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NDF is excited to introduce our new series of podcasts in 2020 called "NDF TALKS…”

Each episode will feature a GNE Myopathy community member’s personal experience with GNEM.
Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNEM.

  • "You get to a point when you want to have the help, or you want to have other people to talk to you and if you're not ready yet I'd say that that's fine, you have to do what's best for you, but just know that you're not alone." - Kevin