The Neuromuscular Disease Foundation (NDF) will launch its annual Symposium on GNE Myopathy Speaker Series on Friday, May 8th, albeit in a much different format than in previous years. The series is designed to educate both the patient and scientific communities on GNE Myopathy, an adult onset muscle-wasting disease. The goal is to feature specific updates from all NDF grant awardees for the 2020 cycle.
We've complied a list of websites and resources we hope you find helpful
In 2018 we set lofty goals for the next two years of our organization. In 2019, not only did we meet - but we exceeded our financial goals. None of this progress would be possible without the support of our generous donors. Read about the progress we made and its impact in our 2019 Annual Report and Impact Statement.