
Because we understand that these are unusual and unsettling times, we want to remind you that that NDF is here to support you.
We have assembled a list of resources/websites that we hope you will find educational and/or entertaining.
If you have suggestions you would like us to share with the community, please e-mail events@curehibm.org
Resources particularly applicable to GNEM patients:
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NORD: New Community Survey Findings from NORD Reveal Significant Impact of COVID-19 on Americans Living with Rare Diseases
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HUDDLE Resource from Psychotherapist Carol Gelbard, L.C.S.W.. Tools for Managing our Mental Health During Quarantine of Covid-19
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Covid-19 and people with neuromuscular disorders: World Muscle Society position and advice: https://www.worldmusclesociety.org
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NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19: https://rarediseases.org
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Global Genes: RARE Patient Impact Grant
- MDA COVID-19 Resource Page: www.mda.org
Coping with Corona Virus:
- The president's coronavirus guidelines for America: https://www.whitehouse.gov
- CDC at https://www.cdc.gov
- WHO at https://www.who.int
- What is Social Distancing: https://www.theatlantic.com
- How Rare Disease patients can prepare: https://patientworthy.com
- How to explain the Coronavirus to kids: https://www.nasponline.org
- When you should self quarantine: https://www.latimes.com
- How to self-isolate: https://www.vox.com
- Social Distance, not social isolation: https://medium.com
- A Psychiatrist’s Guide to Coping with COVID19: https://medium.com
- Meditation tips to combat Covid-19 Stress: https://www.washingtonian.com
- Anxiety is Also Contagious. Here’s How to Calm Down: https://www.mindful.org
- Manage Anxiety & Stress: https://www.cdc.gov
- NORD: Resource Page
- How to Deal with Anxiety: www.drugwatch.com
- How Communities Can Prevent Panic in Uncertain Times: https://www.publichealthdegrees.org
Traveling During the Pandemic:
- Considerations for Travelers: https://www.cdc.go
- Is it safe to fly?: https://www.refinery29.com
- Is it safe to travel?: https://www.nationalgeographic.com
- Road Trip Safety: https://www.aarp.org
Virtual Travel & Entertainment:
- London's National Theatre has announced four more free streaming productions throughout May and June: www.theatermania.com
- Virtual Museum Tours: https://www.travelandleisure.com
- Educational Shows on Netflix: https://www.weareteachers.com
- The Met Opera Nightly Stream (through March 31st) https://www.metopera.org
- The San Diego Zoo has a website just for kids with amazing videos, activities, and games. Enjoy the tour! https://kids.sandiegozoo.org/
- Tour Yellowstone National Park! https://www.nps.gov
- Explore the surface of Mars on the Curiosity Rover. https://accessmars.withgoogle.com/
- This Canadian site FarmFood 360 offers 11 Virtual Tours of farms from minks, pigs, and cows, to apples and eggs. https://www.farmfood360.ca/
- Travel to Paris, France to see amazing works of art at The Louvre with this virtual field trip. https://www.louvre.fr/en/visites-en-ligne
- This Virtual Tour of the Great Wall of China is beautiful and makes history come to life. https://www.thechinaguide.com
- This iconic museum located in the heart of London allows virtual visitors to tour the Great Court and discover the ancient Rosetta Stone and Egyptian mummies. https://britishmuseum.withgoogle.com/
- Virtual Disneyland Rides: https://secretlosangeles.com
- The Paris opera is streaming their performances online: https://www.operadeparis.fr
- Take a tour of The Palace of Versailles: http://en.chateauversailles.fr
- Everything on Netflix in April: Netflix in April
- 12 Frank Lloyd Wright buildings are now hosting virtual tours: thespaces.com/
- Seven Podcasts to Take Your Mind Off Everything: https://www.vanityfair.com
Free Educational Material:
- Home Schooling Moms share their tips: https://www.nbcnews.com
- Education Companies giving free subscriptions: https://kidsactivitiesblog.com/135609
- Parent’s Guide to Google Classroom: https://townsquare.media/site/496/files/2020/03/2020-Parents-Guide-to-Google-Classroom.pdf
- Free Online Learning Resources: https://www.weareteachers.com
- 60+ websites for teaching Math: https://www.weareteachers.com
- High school chemistry topics: https://www.acs.org
- Online history classes for all ages preteen through adults: https://school.bighistoryproject.com
- Biology: https://www.biologysimulations.com/
- Digital archive of history: https://www.bunkhistory.org/
- Coding with Star Wars https://code.org/starwars
- Test Prep for SAT, ACT, etc: https://www.bwseducationconsulting.com
- Geometry: https://www.canfigureit.com/
- Resources for Spanish practice: https://www.difusion.com/campus/
- Chinese learning activities: https://chalkacademy.com/
- Music is for everyone: https://musiclab.chromeexperiments.com/Experiments
- Science, Math, Social Studies: https://www.ck12.org/student/
- Grammar practice for middle grades: https://www.classroomcereal.com/
- Daily free science or cooking experiment to do at home: http://www.clubscikidzmd.com/blog/
- Chemistry: https://www.playmadagames.com/
- Reading passages for grades 3-12, with reading comprehension and discussion questions: https://www.commonlit.org/
- Tons of free classes from leading universities and companies: https://www.coursera.org/
- Digital learning content for preschool through high school: https://www.curriki.org/
- Online homeschool platform & curriculum for Pre-K to 12th grade. All main subjects are covered, plus extra curriculum course: http://discoveryk12.com