Because we understand that these are unusual and unsettling times, we want to remind you that  that NDF is here to support you. 

We have assembled a list of resources/websites that we hope you will find educational and/or entertaining. 

If you have suggestions you would like us to share with the community, please e-mail events@curehibm.org

Resources particularly applicable to GNEM patients:

• NORD: New Community Survey Findings from NORD Reveal Significant Impact of COVID-19 on Americans Living with Rare Diseases

• HUDDLE Resource from Psychotherapist Carol Gelbard, L.C.S.W.. Tools for Managing our Mental Health During Quarantine of Covid-19

• Covid-19 and people with neuromuscular disorders: World Muscle Society position and advice: https://www.worldmusclesociety.org

• NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19: https://rarediseases.org

• Global Genes: RARE Patient Impact Grant

• MDA COVID-19 Resource Page: www.mda.org

Coping with Corona Virus:

• The president's coronavirus guidelines for America: https://www.whitehouse.gov
• CDC at https://www.cdc.gov
• WHO at https://www.who.int
• What is Social Distancing: https://www.theatlantic.com
• How Rare Disease patients can prepare: https://patientworthy.com
• How to explain the Coronavirus to kids: https://www.nasponline.org
• When you should self quarantine: https://www.latimes.com
• How to self-isolate: https://www.vox.com
• Social Distance, not social isolation: https://medium.com
• A Psychiatrist’s Guide to Coping with COVID19: https://medium.com
• Meditation tips to combat Covid-19 Stress: https://www.washingtonian.com
• Anxiety is Also Contagious. Here’s How to Calm Down: https://www.mindful.org
• Manage Anxiety & Stress: https://www.cdc.gov
• NORD: Resource Page
• How to Deal with Anxiety: www.drugwatch.com
• How Communities Can Prevent Panic in Uncertain Times: https://www.publichealthdegrees.org

Traveling During the Pandemic: 

• Considerations for Travelers: https://www.cdc.go
• Is it safe to fly?: https://www.refinery29.com
• Is it safe to travel?: https://www.nationalgeographic.com
• Road Trip Safety: https://www.aarp.org

Virtual Travel & Entertainment:

• London's National Theatre has announced four more free streaming productions throughout May and June: www.theatermania.com
• Virtual Museum Tours: https://www.travelandleisure.com
• Educational Shows on Netflix: https://www.weareteachers.com
• The Met Opera Nightly Stream (through March 31st) https://www.metopera.org
• The San Diego Zoo has a website just for kids with amazing videos, activities, and games. Enjoy the tour! https://kids.sandiegozoo.org/
• Tour Yellowstone National Park! https://www.nps.gov
• Explore the surface of Mars on the Curiosity Rover. https://accessmars.withgoogle.com/
• This Canadian site FarmFood 360 offers 11 Virtual Tours of farms from minks, pigs, and cows, to apples and eggs.  https://www.farmfood360.ca/
• Travel to Paris, France to see amazing works of art at The Louvre with this virtual field trip. https://www.louvre.fr/en/visites-en-ligne
• This Virtual Tour of the Great Wall of China is beautiful and makes history come to life. https://www.thechinaguide.com
• This iconic museum located in the heart of London allows virtual visitors to tour the Great Court and discover the ancient Rosetta Stone and Egyptian mummies. https://britishmuseum.withgoogle.com/
• Virtual Disneyland Rides: https://secretlosangeles.com
• The Paris opera is streaming their performances online: https://www.operadeparis.fr
• Take a tour of The Palace of Versailles: http://en.chateauversailles.fr
• Everything on Netflix in April: Netflix in April
• 12 Frank Lloyd Wright buildings are now hosting virtual tours: thespaces.com/
• Seven Podcasts to Take Your Mind Off Everything: https://www.vanityfair.com

Free Educational Material:

• Home Schooling Moms share their tips: https://www.nbcnews.com
• Education Companies giving free subscriptions: https://kidsactivitiesblog.com/135609
• Parent’s Guide to Google Classroom: https://townsquare.media/site/496/files/2020/03/2020-Parents-Guide-to-Google-Classroom.pdf
• Free Online Learning Resources: https://www.weareteachers.com
• 60+ websites for teaching Math: https://www.weareteachers.com
• High school chemistry topics: https://www.acs.org
• Online history classes for all ages preteen through adults: https://school.bighistoryproject.com
• Biology: https://www.biologysimulations.com/
• Digital archive of history: https://www.bunkhistory.org/
• Coding with Star Wars  https://code.org/starwars
• Test Prep for SAT, ACT, etc: https://www.bwseducationconsulting.com
• Geometry: https://www.canfigureit.com/
• Resources for Spanish practice: https://www.difusion.com/campus/
• Chinese learning activities:  https://chalkacademy.com/
• Music is for everyone: https://musiclab.chromeexperiments.com/Experiments
• Science, Math, Social Studies: https://www.ck12.org/student/
• Grammar practice for middle grades: https://www.classroomcereal.com/
• Daily free science or cooking experiment to do at home: http://www.clubscikidzmd.com/blog/
• Chemistry: https://www.playmadagames.com/
• Reading passages for grades 3-12, with reading comprehension and discussion questions: https://www.commonlit.org/
• Tons of free classes from leading universities and companies: https://www.coursera.org/
• Digital learning content for preschool through high school: https://www.curriki.org/
• Online homeschool platform & curriculum for Pre-K to 12th grade. All main subjects are covered, plus extra curriculum course: http://discoveryk12.com