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Due to popular demand, this event is SOLD OUT!

To add your name to our waitlist, please contact Lyndsey Senet at 323-904-4400 or email


Click here to join the waitlist for this event or to purchase slides in our digital tribute journal.

NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.


GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy

View our report by clicking here