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NDF's United Youth

NDF’s United Youth is a virtual support group for the children of GNE Myopathy patients. It is an online community where young people (age 13-23) can share their experiences and offer advice to one another. This group was co-created by Ariella Rabbani and Lea Patel who both have a parent with GNEM and who wanted to reach out to pre-teens, teenagers, and young adults who are in a similar situation. Check us out on Instagram, request access to join our private Facebook group or for further information, contact us at Youth@cureHIBM.org

Ariella and her mom Sepideh 

Lea and her mom Mona