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NDF's United Youth

NDF’s United Youth is a safe space for the children of GNE Myopathy Patients. It is an online community where children, starting around the age of ten, and teenagers can share their experiences and offer advice to one another. This group was co-created by Ariella Rabbani and Lea Patel who wanted to reach out to pre-teens, teenagers, and young adults who are in a similar situation. There will be a Facebook page coming soon. For further questions, feel free to email Ariella Rabbani at

Check us out at @ndfunitedyouth on Instagram. 

Ariella and her mom Sepideh 

Lea and her mom Mona