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NDF Certified Patient Advocates

                                                  NDF Certified Patient Advocates

NDF is proud to enlist dedicated GNE Myopathy patients from around the world to assist us with our mission of advocating patients worldwide.  

Our CPAs’ mission is aligned with NDF’s goal to enhance the quality of lives of GNEM patients and their families. The Certified Patient Advocates speak many languages and are therefore able to reach out to patients and potential patients in their home countries in order to offer support and resources that new and current patients may otherwise be unaware of.  These advocates are committed to helping NDF in our efforts to bring programs to patients and families in their respective countries.    

Please contact us at for more information about our CPA Program or reach out directly to one of these dedicated advocates in your part of the world. 

North America

Amy Curran - Eastern Region

Imad Kazim - New England

Tara Voogel - Western Region

Melissa - South East Region

Middle East

Abdullah Al Shamrani - Saudi Arabia

Maya Davidovich Cohen & Guy Ratson - Israel

Suleyman Kus - Turkey

Sabeen Faisal - Pakistan

Roberta Cirisyan - Turkey & Greece


Mona Patel & Valenee Gosine - United Kingdom

Michela Onali & Valeria Pace - Italy

Vaneesha Mohadawo & Abajee Dharmajee – France

Saskia Melches - Germany


Ashutosh Verma - India

Kelly Ma - Taiwan/China

Tae-Eun Kang- South Korea


Rose Okoma - Ivory Coast





CPAs:  Click here to login to the NDF Certified Patient Advocate's portal