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Who We Are

Board & Staff

Gila Michael

Gila Michael founded the NDF in 2006 upon learning that her daughter was diagnosed with HIBM. At that time it was believed that this condition was limited to the Persian Jewish population. Since then HIBM (now called GNEM)  has been identified in patients of many ethnicities worldwide, which makes it easier in terms of drug development and research.  For more about GNEM please click here.