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Who We Are

About NDF Ambassadors

NDF Ambassadors is a group of motivated young professionals focused on spreading awareness of Hereditary Inclusion Body Myopathy (HIBM). Our mission is to eradicate HIBM by raising awareness and promoting genetic screening.  

Our NDF Ambassadors:

Amanda Solomonn * Ariel Kasheri * Brian Levian * Chloe Makhani * Daniel Khalili * Desirée Pakravan * Eliot Saeedi * Jacob Zackary *Jason Taban * Kayla Soleimani * Melody Pakravan * Shawn Arianpour * Sogol Ashourpour * Tatiana Broukhim * Tiffany Mikail


Jscreen’s Estie Rose discusses the importance of pre-conception genetic screening with Karen Koren on her “Soul Sessions with KK” podcast

"Genetic Testing: It’s Not Just For Ashkenazis" (published March 2020)







View past events here

To learn about upcoming events or to contact us, visit us on Instagram or via e-mail