Skip to main content


Clinical Research


NDF sponsors scientific studies in the U.S. and abroad, by funding research proposals that advance the collective understanding of GNE Myopathy and facilitate the sharing of data among its consortium of experts on GNEM. 

Since 2006, NDF has collaborated with esteemed organizations such as The University of California, Emory, Yale University, The Broad Institute, Ohio State University, Nationwide Children’s Hospital, and even the NHGRI/National Institutes of Health in North America. Among other places globally, NDF has historical relationships with Newcastle 

University in the UK, Hadassah Medical Center in Israel, National Center for Psychiatry and Neurology, Japan, as well as with academics in India, China, South Korea, Africa and Europe. 

NDF continues to be the world leader in funding diverse and groundbreaking research projects devoted to GNE Myopathy. Our team of new scientific investigators are growing at an impressive rate, and their dedication to data-sharing and genuine collaboration is keeping with NDF’s grant awards and proving to be of great value.

Please see see our list of past and present grantees here. 

If you are interested in submitting a proposal for our next grant cycle please visit this page.


Photos below show Dr. Monkol Lek (Yale University) presenting at our 6th Annual Symposium on GNE Myopathy in Philadelphia, NDF staff visiting a lab at Hadassah while in Israel for our GNE Myopathy Symposium in Tel Aviv and CEO Lalé Welsh at NDF 2019 Gala presenting scientists from around the world who are all part of NDF's Scientific Consortium.