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The first ten patients to register (and attend) will receive an NDF gift bag including items generously donated by manufacturers of devices featured in the presentation.

NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.


GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy

View our report by clicking here

NDF is a registered 501(c)(3) nonprofit organization (EIN: 06-1789643)