NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.
GNE Myopathy is also known as: HIBM, Nonaka Myopathy, Distal Myopathy With Rimmed Vacuoles, Inclusion Body Myopathy 2, IBM 2, Quadriceps Sparing Myopathy
