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Neuromuscular Disease Foundation (NDF) is pleased to announce the GNE Myopathy related research projects selected for funding in 2021. 


View the press release here.


NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.


GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy

View our report by clicking here

NDF is a registered 501(c)(3) nonprofit organization (EIN: 06-1789643)