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NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.

 

GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy