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Genetic Screening Information

where to get screened
AS A CARRIER FOR HIBM/GNE MYOPATHY* 
For more information about genetic screening or to order a genetic test kit, contact one of our partners:
 

If you think you may have weak muscle symptoms you can
get an online diagnosis at the Jain Foundation 
 

*Officially called GNE Myopathy, also known as: HIBM (Hereditary Inclusion Body Myopathy),  Nonaka Myopathy, DMRV (Distal Myopathy with Rimmed Vacuole), QSM (Quadriceps Sparing Myopathy), HIBM2 (Hereditary Inclusion Body Myopathy Type 2), IBM2 (Inclusion Body Myopathy Type 2)