NDF continues to be the world leader in funding diverse and groundbreaking research projects devoted to GNE Myopathy. Recently we supported Doctors Zohar Argov and Stella Mitrani-Rosenbaum at Hadassah Hospital in Jerusalem, Israel in their quest to further their gene therapy research. We also supported our postdoctoral fellow at UCLA, Dr. Hossein Khademian, in his exploration of the basic science underlying the disease.
We are always on the lookout for promising research projects that will directly impact the lives of GNE Myopathy patients.
Ongoing Scientific Studies and Collaborations
The following laboratories and scientists are currently the key players in the field of GNE Myopathy research.
3. HIBM Research Group, Inc., Chatsworth, CA, USA
4. The National Institutes of Health, Bethesda, Maryland, USA
7. National Center of Neurology and Psychiatry, Tokyo, Japan
Dr. Ichizo Nishino
Dr. Ikuya Nonaka
8. Ultragenyx Pharmaceutical Inc., Novato, California, USA