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Upcoming Events

                          NDF Symposium on GNE Myopathy at UCLA

Please join us for our 4th Annual Symposium on GNE Myopathy (HIBM), a two-day, fact and fun-filled event including up-to-the-minute information, presentations, panel discussions, and individualized breakout groups for patients; caregivers; and scientists, physicians, and industry professionals.  Meals will be provided for all attendees. Register Now


                                                 Thursday, August 24, 2017 at 9:00 AM PDT


                                                 Friday, August 25, 2017 at 4:00 PM PDT



                                                 330 De Neve Drive,

                                                 Los Angeles, CA 90095  


Fall 2017                              NDF Los Angeles Fundraiser & Gala