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2018 Patient Day on GNE Myopathy (HIBM) - Istanbul, Turkey

Our patient day in Turkey was a huge success thanks to our local NDF Certified Patient Advocate, Dr. Süleyman Kus.  In collaboration with the University of Istanbul and the Muscular Dystrophy Association of Turkey, we were able to host over 65 people (patients, caretakers,and physicians alike) who heard the latest from the NIH and the Hadassah Medical Center, as well as the unique issues facing our Middle Eastern constituency.

 

We are proud to share that GNE Myopathy made the news in Turkey! Click here to read how NDF's own CPA spearheaded Istanbul's first ever event on HIBM/GNE Myopathy and here to read the news recap of the event.