5th Annual Symposium on GNE Myopathy
See more from the 5th Annual Symposium, here.
UK GNE Myopathy Patient Dayhere.
NDF Ambassadors Host Awareness Dinner
See more photos from the event here.
Celine Talk Series Event - Madison Ave, New York
Celine brought awareness to the GNEM community during their Talk Series Event and donated a percent of a week’s worth of purchases made at their Madison Avenue location to the GNE Myopathy Community through NDF!
Patient Day on GNE Myopathy (HIBM) - Istanbul, Turkey
Click here, to see more photos from the 2018 Patient Day on GNE Myopathy (HIBM) in Istanbul, Turkey.
2018 GNEM Meeting in Italy
2017 GNEM Meeting in Israel
Click here, to see more photos from the 2017 GNEM Meeting in Israel.
'Eyes Wide Shut' Hosted by The NDF Ambassadors - Hollywood, CA
Click here, to see more photos from the NDF Ambassadors' event.
4th Annual NDF Symposium on GNE Myopathy - UCLA
Click here, to see more photos, watch presentations, and learn the impact of the 2017 NDF Symposium.
Celebrating GNEM And Rare Disease Patients - Ultragenyx 2017
Meeting GNEM Patients and Attending The World Muscle Society Conference, 2016 Spain
NDF Patients Day
New York Chapter
Patients Day Symposium - 2016 UCLA, Los Angeles. California
Images from Patients Day Symposium, August 31st- September 1st
The NDF Hosted National and International GNEM Patients and many Esteemed Scientists at UCLA, Los Angeles, California
Volunteer Appreciation Luncheon and Fundraising with Maz Jobrani
Ultragenyx Patients Day, 2016 Novato, California
Patients Day Celebration was held for all patients with Rare Diseases
Global Genes Conference, 2016, Huntington Beach, California
Attending the Global Genes Conference
International Conference on Neuromuscular Diseases in Toronto, Canada, 2016
Research Lab, Israel
Dr. Argov and Dr. S. Rosenbaum Conducting Research, Hadassah, Israel
2015 Patient Day Symposium
2015 Black and White Ball
October 14, 2015 at the Beverly Hills Hotel
2014 Black and White Ball
November 13, 2014 at the Beverly Hills Hotel