Skip to main content

News & Events

Press & Media Links

Please join us for our 4th Annual Symposium on GNE Myopathy (HIBM), a two-day,(August 24 & 25, 2017) fact and fun-filled event including up-to-the-minute information, presentations, panel discussions, and individualized breakout groups for patients; caregivers; and  world distinguished scientists, physicians, and industry professionals.  We look forward to seeing and meeting each one of you.  Register and Apply Here.

If you’re looking for a way to get in shape and get involved in the community, we’ve got you covered. Here are five reasons to run for a charity this summer.

How can we celebrate this day while remembering those among us in different situations? Today we’re going to talk about how to give Dad the gift of altruism this Father’s Day.

While every individual is unique and has their own preferences, there are some general guidelines to follow when interacting comfortably and respectfully with people with disabilities.

This Memorial Day, we remember and honor the men and women who have served our country’s armed forces—specifically those who have given the ultimate sacrifice.