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2017 NDF Symposium on GNE Myopathy

Please join us for our 4th Annual Symposium on GNE Myopathy (HIBM), a two-day, fact and fun-filled event including up-to-the-minute information, presentations, panel discussions, and individualized breakout groups for patients; caregivers; and scientists, physicians, and industry professionals.  Meals will be provided for all attendees.


Thursday, August 24, 2017 at 9:00 AM PDT
Friday, August 25, 2017 at 4:00 PM PDT    



De Neve Commons

351 Charles E Young Drive West

Los Angeles, CA 90024

An Interactive Map of UCLA Campus  

Link for the Updated Agenda and Highlights of the Symposium




NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.


GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy